I also saw my neurologist and she asked me what my goals were for the surgery so that she could go over them with the surgeon and make sure I was being realistic. I basically have three main goals:
- Get rid of the dyskinesia that has been increasing as I take more and more medication.
- Get rid of the tremor during off times.
- Reduce my total medication intake.
Some might be surprised to see the gait improvements not on there; however, I've been learning over the past year that DBS does not really provide gait improvement. Yet, by needing less medication over the day, I will have more on-time and therefore will have more time with better gait.
While I hate having to wait 6-8 months for the surgery (my insurance company had already approved the surgery before they had contacted my cardiologist), I know it is the best decision and we want to minimize risks as much as possible.
In the mean time, I am now training for the Mission Bay Triathlon in October and will be able to complete the race since I will not be having surgery before the date of the race. You can track some of my training progress over in the sidebar, where I will be posting my training runs, bikes and swims to daily mile.